Scientific Programme

8.30 – 9.00 Registration
Chairperson: Damjan Osredkar
9.00 – 10.00 Mercuri: Novel treatment options for NMD
10.00 – 11.00 Fauroux: How to objectively assess key respiratory predictors in NMD
11.00 – 11.30 Coffee break
Chairperson: Uroš Krivec
11.30 – 12.30 Mercuri: Shift of perspective on treating NMD
12.30 – 13.30 Fauroux: Current best care in home respiratory support
13.30 – 15.00 Lunch break
Chairperson: Tanja Golli
15.00 – 15.25 Golli, Zver, Osredkar: Slovenian pediatric NMD registry
15.25 – 15.50 Zver, Krivec: End-of-life care decisions in a pediatric respiratory unit
15.50 – 16.30 Brierley: End-of-life decisions in progressive neuromuscular diseases
16.30 – 17.00 Coffee break
Chairperson: David Neubauer
17.00 – 17:45 Brierley: The Challenges of Caring for Long-Stay Patients in the PICU
17:45 – 18.15 Discussion & Closing remarks
18:15 – Social gathering