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The Symposium on Neuromuscular Diseases, that will be held in Ljubljana on 29th of September 2017, will focus on the new advances in treatment of NMD, neurological and pulmological complications and ethical issues related to NMD. The symposium will focus particularly on children with NMD.

State of the art medicine related to NMD will be presented at the symposium. It is intended for anyone taking care of NMD patients, from those with years of experience to those in training.

 

Scientific Program Committee

Damjan Osredkar, Uroš Krivec, David Neubauer

Organizing Comittee

Neli Bizjak, Tita Butenko, Tanja Golli, Branka Kenda, Luka Kopač, Uroš Krivec, Dušanka Lepej, Jasna Oražem Mrak, Damjan Osredkar, David Neubauer, Mirjana Perković Benedik, Zvonka Rener Primec, Klavdija Sukič, Nataša Šuštar, Anja Troha Gergeli, Aleksandra Zver.

Under the auspices of

Scientific Programme

8.30 – 9.00 Registration
Chairperson: Damjan Osredkar
9.00 – 10.00 Mercuri: Novel treatment options for NMD
10.00 – 11.00 Fauroux: How to objectively assess key respiratory predictors in NMD
11.00 – 11.30 Coffee break
Chairperson: Uroš Krivec
11.30 – 12.30 Brierley: The Challenges of Caring for Long-Stay Patients in the PICU
12.30 – 13.30 Fauroux: Current best care in home respiratory support
13.30 – 15.00 Lunch break
Chairperson: Tanja Golli
15.00 – 15.25 Golli, Zver, Osredkar: Slovenian pediatric NMD registry
15.25 – 15.50 Zver, Krivec: End-of-life care decisions in a pediatric respiratory unit
15.50 – 16.30 Brierley: End-of-life decisions in progressive neuromuscular diseases
16.30 – 17.00 Coffee break
Chairperson: David Neubauer
17.00 – 17:45 Mercuri: Shift of perspective on treating NMD
17:45 – 18.15 Discussion & Closing remarks
18:15 – Social gathering