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Duchenne’s Muscular Dystrophy –
New Perspectives

Friday, September 21, 2018
Hotel Union, Ljubljana, Slovenia

The 2nd Slovene Symposium on Neuromuscular Diseases, that will be held in Ljubljana on 21st of September 2018, will focus on the new advances in treatment of Duchenne’s Muscular Dystrophy (DMD). The focus will be on the new guidelines for treatment of DMD patients, their gastrointestinal and endocrinological complications, particularly the children. Our guest this year will be dr. Nikhil Thapar, from UCL Great Ormond Street Institute of Child Health.

State of the art medicine related to DMD will be presented at the symposium. It is intended for anyone taking care of DMD patients, from those with years of experience to those in training, as well as other communities with the interest in the topic of DMD.

Program PDF

Scientific Program Committee

Damjan Osredkar, Matjaž Homan

Organizing Comittee

Neli Bizjak, Tita Butenko, Tanja Golli, Matjaž Homan, Tadeja Hostnik, Branka Kenda, Rok Kučan, Tanja Loboda, Damjan Osredkar, David Neubauer, Mirjana Perković Benedik, Zvonka Rener Primec, Nataša Šuštar, Anja Troha Gergeli.

Under the auspices of

Scientific Programme

Duchenne’s Muscular Dystrophy – New Perspectives

Friday, September 21, 2018
Hotel Union, Ljubljana, Slovenia

8.30 – 9.00 Registration
Chairperson: Damjan Osredkar
9.00 – 9.15 Damjan Osredkar
Welcome and introduction
9.15 – 10.00 Tanja Golli
The natural Course of DMD
10.00 – 10.45 Tanja Loboda, Tita Butenko
New Standards of Care
10.45 – 11.05 Coffee break
Chairperson: Matjaž Homan
11.05 – 12.00 Nikhil Thapar
State of the Art Gut & Brain Science
12.00 – 12.45 Matjaž Homan
Gastrointestinal Dysfunction and Nutritional Issues
12.45 – 14.00 Lunch break
Chairperson: Primož Kotnik
14.00 – 14.45 Primož Kotnik
Endocrinological Dysfunction and Bone Issues
14.45 – 15.30 David Gosar
Cognitive and Psychologic Issues in patients with
DMD and SMA
15.30 – 16.15 Damjan Osredkar
Novel treatment options for DMD patients
16.15 – 16.35 Coffee break
Chairperson: Tanja Golli
16.35 – 17.05 Dušanka Lepej, Uroš Krivec
Respiratory support in patients with DMD
17.05 – 18.05 Katja Groleger
Rehabilitation of DMD patients
18.05 – 18.25 Milena Rogelj, Tina Sabadin
Caring for DMD patients – the Nursing Perspective
18.25 – 18.45 Discussion & Closing remarks
18.45 – 19.30 Social gathering